A brief history of the past few months, Part I

This is something I’ve been meaning to do for a while now. When I learned about my brain tumour, a friend from church suggested that I write about my experiences. That didn’t happen, but I still think it’s worth chronicling, if only to have a record of it for myself.

Since I wasn’t really keeping track of this stuff as it happened, what follows is, as Margaret Atwood’s heroine Offred would say, a “reconstruction”. I’ll try not to recount every detail of every doctor’s appointment I’ve had, but even so, my condensed version will require a lot of text, so I’ll spare you the eye strain and do this in chunks. Think of it as episodes in a serial medical drama.

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PROLOGUE:

• 2007:
  • I’m talking with friends in the TDCH Commons at lunch, and I realize that it’s hard for me to hear them. I cup my right ear in their direction, and it seems to help.
  • I realize that I’m having a hard time hearing the people who sit to my left on the schoolbus.
  • It’s the TDCH talent show, and I’m working as a stagehand, helping the acts with their microphones as they go on and off the stage. The people working at the sound booth gave me a headset so I could hear their instructions. Except that it was one of those headsets that only has one ear, and it was made for the left ear. By this time, I had a slight suspicion that my left ear was a bit weaker than my right ear ("Just like being left-eye- or right-eye-dominant," I told myself at the time). And sure enough, I could barely understand their instructions, leading to some embarrassing misunderstandings (really embarrassing given that one of the guys on sound – a friend of one of the teachers – was a Juno-nominated producer).
• 2008:
  • I noticed that I was having problems swallowing dry foods like bagels. The stuff seemed to get stuck in the upper part of my throat until I washed it down with water. I had a barium swallow at a nearby hospital, but the images didn’t show anything suspicious.
  • One day, I talked with my grandmother on the phone, and, trying to multitask, I held the phone against my left ear. I could barely make out the words she was saying. I spent the rest of the afternoon lying on the couch – I suppose I was stressed out by it at the time.
• 2009:
  • On the way to a band practice with Dad one morning, I mentioned how I definitely thought my hearing was getting worse; my estimate was that I had lost 15-20% of the hearing in my left ear, and gained a strange hiss in its place. I had a hearing test at the doctor’s office – the most basic hearing test you can imagine. It showed no hearing loss.
  • I was still having problems swallowing, so I was referred to an ENT (ear/nose/throat) specialist in Sarnia. While I was there, I mentioned about my hearing loss, and I had a more sophisticated hearing test there. My estimate of 15-20% turned out to be pretty accurate – but the hearing loss was mainly in the lowest and highest frequencies. Based on this characteristic and the hissing, the ENT specialist suspected that my auditory nerve was damaged, and he sent me for a CT scan at the local hospital.
  • The CT scan didn’t show anything suspicious. So, since it was nerve damage and not eardrum damage, it was the sort of thing no hearing aid could fix – make the sound as loud as you want, and it still won't make it to the brain. I was just going to have to live with the nerve damage and hope it didn’t get worse. I imagined myself walking from class to class at Waterloo that fall, messenger bag slung over my shoulders, trying to be a hip university student, and still having this annoying hiss in my ear.
  • During the early part of the summer, I went for acupuncture to try and fix my hearing. Didn’t work.
  • Oddly enough, once I stopped the acupuncture, my hearing got worse. To the point where I told my classmates at Waterloo that I was basically deaf in my left ear, so if you’re going to walk beside me, walk on my right side if you want me to hear you.
  • My hearing loss didn’t go unmentioned when I would phone my parents from Waterloo. Shortly before Christmas, Mom called the ENT specialist to get me in for another hearing test while I would be home for Christmas. Being the only ENT clinic in Sarnia, they were booked solid, but they said they could squeeze me in when I would be at home for Reading Week.

NEXT TIME…“SWEET! I had forgotten about that!”